What It’s Really Like To Be Chronically Ill

Thought Catalog

Society’s recent obsession with cancer stories and movies like The Fault in Our Stars made me realize that the average person doesn’t know what it’s really like to be sick. Chronically sick. What it’s like to wake up every morning and know you’re never going to get better. No amount of medicine, doctors, surgeries, and procedures can fix you.

I think the reason why people today love to hear about cancer stories is because they are just that. They are stories. They have a beginning, middle, and an end. While that end may not be a happy one, people are satisfied with closure. But my story doesn’t have an end. And people don’t seem to like stories without an ending.

Being sick isn’t as glamorous as they make it out to be in the movies. And unlike cancer perks, there are no “chronic illness perks.” Except maybe those really good…

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One comment

  1. Thank you for posting this- especially during childhood cancer awareness month.
    I was just having a similar convo with a friend whose son has leukemia. Asked her what she thought of all the shows and movies romanticizing something not so sexy. I think you are right on about the ongoing part of chronic illness being BLAH. That these stories have an ending and ours may not- not so sexy??
    Then I remembered my childhood books and Little Women- Beth UGGH! But I didn’t ONLY go for those with an ending… I loved Joni Erickson Tada’s story of art, passion and overcoming unbeatable odds. I loved Helen Keller’s badass story of becoming a hero in-spite of her crazy circumstances.
    So… while people don’t like to hear about misery and pain ongoing. They do respond to how we transform terrible odds.
    I really responded to your blog post. Thanks so much for sharing it. Spoonie hugs.

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