#Invisibleillnessweek #IIWK15 #MyinvisibleFight
1. The illness I live with is: Rheumatoid Arthritis,Fibromyalgia,Polymyalgia Rheumatica,General Anxiety Disorder,Agoraphobia,Social Phobia,Migraines,TMJ Disorder, I also have Hypertension and GORD.
2. I was diagnosed with it in the year:
1996 (Anxiety Disorder but have had the anxiety since childhood),Social Phobia diagnosed but had since childhood and Agoraphobia)
2013 (Fibromyalgia and Hypertension
(2014 GORD and TMJ)
3. But I had symptoms since:1987 (Migraines)2010(RA and Fibro)
4. The biggest adjustment I’ve had to make is: Not being able to once do what I used to and struggling day to day with tasks and taking Medications.
5. Most people assume: That I look well but truth is i’m not but I still say thanks and take it as a compliment because they aren’t to know that’s why I am an Advocate to make these diseases visible. #MyinvisibleFight #InvisibleIllness
6. The hardest part about mornings are: Moving and still being fatigued throughout the day.
7. My favorite medical TV show is: House
8. A gadget I couldn’t live without is: My Ipod classic cause it fits thousands of songs on it and helps me to relax. Problem is though I can’t turn my music up loud because loud music is a trigger for my migraines #Phonophobic #photophobic
9. The hardest part about nights are: Getting enough sleep or getting to sleep #Thestruggleisreal #Fatigued
10. Each day I take many pills & vitamins including Chemo meds that I have to take for the rest of my life unless a cure is one day found. Once a month I also have an infusion Treatment called #Actemra(No comments, please)#Methotrexate #ChronicIllness
11. Regarding alternative treatments I have tried with regards to diets or different approaches to eating.
12. If I had to choose between an invisible illness or visible I would choose: Visible because at least you may not be doubted not having to choose at all would be even better cause some days a pure hell.
13. Regarding working and career: I am on Disability may be able to work from home doing either health Advocacy or photography.
14. People would be surprised to know: I like to spend alot of time on my own or maybe that’s not so suprising I don’t know..
15. The hardest thing to accept about my new reality has been: The constant Fatigue and daily chronic pain.
16. Something I never thought I could do with my illness that I did was: Reach out to others because of my life long Anxiety but I am super proud of myself for doing so I have really come a long way.
17. Advertisements about my illness always: portray that once u take meds you could basically run a marathon so not true though and it really upsets the community that’s for sure.
18. Something I really miss doing since I was diagnosed is: Doing more activities with my nieces
19. It was really hard to have to give up: My studies in IT and Web Design. Cognitive issues have been a big issue and was unable to continue.
20. A new hobby I have taken up since my diagnosis is: Card Making crafts and Adult coloring
21. If I could have one day of feeling normal again I would: Dance like nobody is watching and get my fitness on.
22. My illness has taught me: That I have to live in the moment because no day is the same especially when it’s chronic.
23. Want to know a secret? One thing people say that gets under my skin is: You only go online to be part of the pity train and enough is enough. It’s so not true I just believe that we all need to support each other in our times of need and if we did the world would make for a better place that’s why I created United Advocacy.
24. But I love it when people: Show support and care about each others causes because together we can all make a difference no need for judgement.
25. My favorite motto, scripture, quote that gets me through tough times is: Together we can make a difference.
26. When someone is diagnosed I’d like to tell them: You are not alone I’m here for you if u ever need to talk.
27. Something that has surprised me about living with an illness is: The amount of people who have connected with me and the new friendships I have made.
28. The nicest thing someone did for me when I wasn’t feeling well was: let me sleep
29. I’m involved with Invisible Illness Week because: I was chosen by a lovely lady by the name of Lisa Copen who added me as part of a top squad invisible Illness group of Advocates 🙂
30. The fact that you read this list makes me feel: Special and loved because you took the time to care.
Let me know you read this to the end via my Facebook page http://facebook.com/unitedadvocacy