This piece has been entered in the Patients Have Power Writing Contest run by Clara Health designed to raise awareness about clinical trials. I am passionate about this cause and hope it will help raise much needed awareness about the power of breakthrough research. All thoughts below this disclaimer that I express are my own.
I am Judy Advocate for Chronic Illness and Mental Health,Published Writer in Real Life Diaries-Living With Rheumatic Disease(Find it on Amazon,Contributor in #IPainLivingMagazine,#CureArthritis Crew Member for the Arthritis National Research Foundation,@AIArthritis Rep,International Pain Foundation(#IPain) Delegate,@Clara_Health Breakthrough Crew Member and WegoHealth Nominee in 2017 for best in show Facebook and Twitter. You can also find me here
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I live with Autoimmune/Inflammatory Arthritis(RA),Fibromyalgia Migraines,PMR and others listed on my header. I Advocate in support of all who live with any illness,I make my own graphics aswell as volunteering online to help create global awareness.
- Scalp Psoriasis,
- General Anxiety Disorder,
- Social Anxiety Disorder,
- GastroEsophegal Reflux Disease(GERD)
- Mild Spinal Stenosis
As I am a member of the #breakthroughcrew with @ClaraHealth and I’m all about Awareness I’m very excited to have the opportunity to write this post about clinical Trials.
I hope to one day take part in a clinical trial because if it could some day lead to a cure why wouldn’t I take part and be involved in something greater than I that could potentially save lives and make for a few less life changing diseases. If the trials eventually lead to a cure it makes sense right? #PatientsHavePower and together with researchers we could truly make a difference.
I mean I understand the fears some people may have however if you are well informed and do your research, get any questions you may have answered you should generally be good to go and always communicate your concerns before,during and after any processes that take place.
I live with multiple chronic illness’ and definitely wouldn’t want any member of my family or friends ever having anything that I live with so hopefully in this life time I can step up(get involved in a trial when the opportunity arrives),support and share info. Everything you need to know about clinical trials are right here check them out today. 👉🏼Clinical Trial guides
Life can be hard but nothing would break my heart more if my nieces or anyone else had to live with such life changing illness’ and knowing that I could of done something to somehow help for future generations and it’s why I’m supporting clinical trials.
I would love to wake up everyday and not have to be concerned with taking multiple medications whilst trying to go about daily life working around each condition that I live with and how it is affecting me. I and many other patients have to constantly factor in time management,possible journal writing,watching calendars,watching energy levels,fighting stigma and symptoms,practising self care and being super brave through all impending treatments and interactions.
I truly admire all patients no matter what we live with. I never place any judgement on any individual. I personally believe that everyone should support one another no matter how severe one’s illness is because everyone’s body reacts or doesn’t react differently from 1 person to the next. What works for one individual doesn’t necessarily bring results for someone else.
I’m definitely wanting to be the voice for anyone who feels they can’t and advocating and supporting patients,families,caregivers and other Advocates aswell as members of the medical community that want to work together with patients.
If we all work together we can in the end create better outcomes for us all and make better informed decisions about our health care.
I will always have hope it runs through me yes it runs deep but if I don’t have it then I would feel like I was empty.
I have a strong will and I want to be an empowered patient I learn from Twitter Chats,Patient communities,amazing organisations relating to conditions that I Advocate for find them on the screenshot from my blog below.
A big Thankyou to Clara Health for running this competition and every other person who lives with a disease that has no cure we are in this together and I’m determined this fight will one day be won. Remember #PatientsHavePower The choice is in our hands.