Day 4-#RDBlogweek Prompt 4 Community

Day 4-#RDBlogweek Prompt 4 Community

Our community is often hard on each other, even going as far as accusing others of not having RA when they can physically do more than others. How can we educate our own community on RA and how it affects each one of us differently.

Letter to someone pretending to live with a condition like RA, Rheumatic Diseases or any other condition out there.(Time educate)

To whom this may concern,

Let me begin telling you about the symptoms many of us in our community live with regarding Rheumatoid Arthritis.

  • Joint Pain,
  • Swelling,
  • Fatigue
  • Fever
  • Extreme sweating
  • Dry Eyes
  • Dry Mouth
  • High BP
  • Chronic Pain and stiffness
  • Skin rash
  • Brain Fog
  • Gord
  • Anemia
  • Low red/white blood count
  • Joint deformities
  • Rheumatoid Nodules
  • Nausea
  • Weight changes
  • TMJ Disorder
  • Skin damage
  • Heart damage
  • Lung scaring
  • Inflammation
  • Bone loss
  • Flu Like symptoms
  • Organ involvement
  • Chest Pain
  • Oral Health Issues
  • Nerve compression
  • Muscle wasting
  • blocked or hardened arteries
  • Being more prone to infection
  • How Rheumatoid Arthritis is treated

  • DMARDS-Disease-Modifying AntiRheumatic Drugs and Biologics are used to treat Rheumatoid Arthritis by acting on the immune system to slow the disease progression. If you are faking I urge you to STOP doing this as we take our DMARDS and biologics to keep us moving and to slow the damage this disease can cause. You must realise that you are hurting us by doing this.

  • Some of us in the community choose other paths like taking other therapies and that’s ok too because we are all different and we all have the right to choose what works best for us.

    While u sit there faking the disease you are generally downplaying the disease those of us genuine folks live with everyday PLEASE STOP because that’s not ok.

    Sincerely Judy The United Advocate on behalf of the #RheumaticDisease and #ChronicIllness Communities.

    My thoughts on someone having or not having RA(if someone is faking or not)

    Honestly in my opinion we should all support each other everyone’s pain is valid whether someone has it worse than someone else is besides the point. If they don’t have it then of course that would be very wrong in claiming that they did but until we know for sure I guess we as a community have to assume that they do until such a time one knows for sure. The only way we would know for sure is if their doctor told us and that would be a breach of confidentiality so when it comes down to the matter common sense really needs to be used in such a situation. Naturally, I wouldn’t be impressed if it was found out that someone was faking and didn’t have a rheumatic disease that we as a community are always advocating about. Shame on anyone who IS actually doing this they will never understand the hurt they are causing to those of us actually trying to help others and make a difference in the world.

    2 thoughts on “Day 4-#RDBlogweek Prompt 4 Community

    1. I think a race to the most ill is a race no one can really win. It reminds me of an old saying in my neighborhood: First liar dont stand a chance. We need to be honest, being honest is the only way to really move forward.

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