Invisible Illness

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“a little reminder of what invisible illness looks like. just because you can’t see or feel the pain we feel doesn’t mean it’s not there.” – kelly crabb, #purpleproject

#justoneface #invisibleillness #IIWK15 #InvisibleFight
wpid-fb_img_1441578863736.jpghttps://facebook.com/kellyontherun

Faces wanted for Invisible Illness Awareness Week 2015

IIWK15 PIC

Like✔ #Tag✔ #Comment✔ #Share✔

IMPORTANT POST PLEASE SHARE OR COPY AND PASTE INTO YOUR NETWORKS SPREAD THE WORD!!!!!!!

WANTED:Judy would like Your beautiful facial pics and list of main Illness’

WHY: For a multi person digital collage for Invisible illness Awareness for Invisible Illness Week.

REQUIREMENTS: 1000×1000 pixel Image of mainly your beautiful and handsome faces as the Collage will state on a caption at the bottom:

These are the faces of invisible Illness’ #InvisibleFight #InvisibleIllness #IIWK15.

Also please list invisible Illness’ which will also be listed at the bottom of the collage.

Please email: jfbegatafe@gmail.com

Please have all submissions to Judy by the 20th of September as she will then need the time left to create the Collage.

Invisible Illness week begins September 28th to October 4th I am part of a Top Squad Awareness team of which I am honoured to have been invited to be apart of.

#MyInvisibleFight #InvisibleIllness #IIWK15

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#INVISIBLEFIGHT #IIWK15

A fight that you have that no one sees.
I Have Rheumatoid Arthritis,Migraines,Fibromyalgia,
Polymyalgia Rheumatica,
Hypertension,GORD,TMJ Disorder,Agoraphobia,Social Anxiety and General Anxiety Disorder. All are illness’ where it’s not always visible that one is sick yet if you turned us inside out you would soon see.

These are the invisible Illness’ that I have lived with all my life with the exception of Rheumatoid Arthritis,Fibromyalgia GERD and Hypertension which I was diagnosed with since 2012.

One person who makes you get up and fight each day to have a life
Me,Myself and I yes that’s right cause as they say the only one strong enough to kick my BUTT is ME.

one decision you fought to make that has been a good thing (or not so good)
what treatment or medication did you fight for?
I actually fought against a Medication that I really felt awful on and it made me gain weight which I am still trying to get off. #Thestruggleisreal

one hurdle that fought to take your hope from you, but you fought to get it back!
how you keep fighting to live when life wants to get you down.
Despite my illness’ I think I was put on this earth to be kind,caring and thoughtful towards others and that’s why I have this blog. It’s the online support and caring community that keep my spirits up and my family aswell.

why you fight for awareness as an illness advocate (or just some man or woman who likes to make some noise)
I fight for awareness as an illness Advocate because not all diseases are visible and it’s time the world knew that so that in time there is no judgement from people who don’t understand.

I want all patients no matter what illness they live with to know that I care about trying to make a difference and I support and believe them.

one time you fought to stand up for an unjust situation.
I have signed a letter with regards to Creakyjoints campaign to government regarding Biologics rebranding and not telling the patient.

what advice you would give someone recently diagnosed about how to choose what to fight about and what to let go of.
I would advise them to always hold on to hope because if you don’t you have nothing.

I would say fight for your Medical Records cause sometimes the professionals don’t want to hand things over but I believe it’s our right after all it’s our information yeah?

I would say fight for your Medications eg any changes to the Medication that aren’t discussed with you or insurance if you need it.

Also fight for disability if u really need it and don’t give up if not accepted the first time.

I was accepted first time(Lucky for me) but some of you aren’t so just keep persevering be brave and hang in there they will soon see how you really need it.

30 Things About My Invisible Illness You May Not Know

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image30 Things About My Invisible Illness You May Not Know

#Invisibleillnessweek #IIWK15 #MyinvisibleFight

1. The illness I live with is: Rheumatoid Arthritis,Fibromyalgia,Polymyalgia Rheumatica,General Anxiety Disorder,Agoraphobia,Social Phobia,Migraines,TMJ Disorder, I also have Hypertension and GORD.

2. I was diagnosed with it in the year:
1987 (Migraines)
1996 (Anxiety Disorder but have had the anxiety since childhood),Social Phobia diagnosed but had since childhood and Agoraphobia)
2012(RA)
2013 (Fibromyalgia and Hypertension
(2014  GORD and TMJ)

3. But I had symptoms since:1987 (Migraines)2010(RA and Fibro)

4. The biggest adjustment I’ve had to make is: Not being able to once do what I used to and struggling day to day with tasks and taking Medications.

5. Most people assume: That I look well but truth is i’m not but I still say thanks and take it as a compliment because they aren’t to know that’s why I am an Advocate to make these diseases visible. #MyinvisibleFight #InvisibleIllness

6. The hardest part about mornings are: Moving and still being fatigued throughout the day.

7. My favorite medical TV show is: House

8. A gadget I couldn’t live without is: My Ipod classic cause it fits thousands of songs on it and helps me to relax. Problem is though I can’t turn my music up loud because loud music is a trigger for my migraines #Phonophobic #photophobic

9. The hardest part about nights are: Getting enough sleep or getting to sleep #Thestruggleisreal #Fatigued

10. Each day I take many pills & vitamins  including Chemo meds that I have to take for the rest of my life unless a cure is one day found. Once a month I also have an infusion Treatment called #Actemra(No comments, please)#Methotrexate #ChronicIllness

11. Regarding alternative treatments I have tried with regards to diets or different approaches to eating.

12. If I had to choose between an invisible illness or visible I would choose: Visible because at least you may not be doubted not having to choose at all would be even better cause some days a pure hell.

13. Regarding working and career: I am on Disability may be able to work from home doing either health Advocacy or photography.

14. People would be surprised to know: I like to spend alot of time on my own or maybe that’s not so suprising I don’t know..

15. The hardest thing to accept about my new reality has been: The constant Fatigue and daily chronic pain.

16. Something I never thought I could do with my illness that I did was: Reach out to others because of my life long Anxiety but I am super proud of myself for doing so I have really come a long way.

17. Advertisements about my illness always: portray that once u take meds you could basically run a marathon so not true though and it really upsets the community that’s for sure.

18. Something I really miss doing since I was diagnosed is: Doing more activities with my nieces

19. It was really hard to have to give up: My studies in IT and Web Design. Cognitive issues have been a big issue and was unable to continue.

20. A new hobby I have taken up since my diagnosis is: Card Making crafts and Adult coloring

21. If I could have one day of feeling normal again I would: Dance like nobody is watching and get my fitness on.

22. My illness has taught me: That I have to live in the moment because no day is the same especially when it’s chronic.

23. Want to know a secret? One thing people say that gets under my skin is: You only go online to be part of the pity train and enough is enough. It’s so not true I just believe that we all need to support each other in our times of need and if we did the world would make for a better place that’s why I created United Advocacy.

24. But I love it when people: Show support and care about each others causes because together we can all make a difference no need for judgement.

25. My favorite motto, scripture, quote that gets me through tough times is: Together we can make a difference.

26. When someone is diagnosed I’d like to tell them: You are not alone I’m here for you if u ever need to talk.

27. Something that has surprised me about living with an illness is: The amount of people who have connected with me and the new friendships I have made.

28. The nicest thing someone did for me when I wasn’t feeling well was: let me sleep

29. I’m involved with Invisible Illness Week because: I was chosen by a lovely lady by the name of Lisa Copen who added me as part of a top squad invisible Illness group of Advocates 🙂

30. The fact that you read this list makes me feel: Special and loved because you took the time to care.

Let me know you read this to the end via my Facebook page http://facebook.com/unitedadvocacy