Day 4-#RDBlogweek Prompt 4 Community

Day 4-#RDBlogweek Prompt 4 Community

Our community is often hard on each other, even going as far as accusing others of not having RA when they can physically do more than others. How can we educate our own community on RA and how it affects each one of us differently.

Letter to someone pretending to live with a condition like RA, Rheumatic Diseases or any other condition out there.(Time educate)

To whom this may concern,

Let me begin telling you about the symptoms many of us in our community live with regarding Rheumatoid Arthritis.

  • Joint Pain,
  • Swelling,
  • Fatigue
  • Fever
  • Extreme sweating
  • Dry Eyes
  • Dry Mouth
  • High BP
  • Chronic Pain and stiffness
  • Skin rash
  • Brain Fog
  • Gord
  • Anemia
  • Low red/white blood count
  • Joint deformities
  • Rheumatoid Nodules
  • Nausea
  • Weight changes
  • TMJ Disorder
  • Skin damage
  • Heart damage
  • Lung scaring
  • Inflammation
  • Bone loss
  • Flu Like symptoms
  • Organ involvement
  • Chest Pain
  • Oral Health Issues
  • Nerve compression
  • Muscle wasting
  • blocked or hardened arteries
  • Being more prone to infection
  • How Rheumatoid Arthritis is treated

  • DMARDS-Disease-Modifying AntiRheumatic Drugs and Biologics are used to treat Rheumatoid Arthritis by acting on the immune system to slow the disease progression. If you are faking I urge you to STOP doing this as we take our DMARDS and biologics to keep us moving and to slow the damage this disease can cause. You must realise that you are hurting us by doing this.

  • Some of us in the community choose other paths like taking other therapies and that’s ok too because we are all different and we all have the right to choose what works best for us.

    While u sit there faking the disease you are generally downplaying the disease those of us genuine folks live with everyday PLEASE STOP because that’s not ok.

    Sincerely Judy The United Advocate on behalf of the #RheumaticDisease and #ChronicIllness Communities.

    My thoughts on someone having or not having RA(if someone is faking or not)

    Honestly in my opinion we should all support each other everyone’s pain is valid whether someone has it worse than someone else is besides the point. If they don’t have it then of course that would be very wrong in claiming that they did but until we know for sure I guess we as a community have to assume that they do until such a time one knows for sure. The only way we would know for sure is if their doctor told us and that would be a breach of confidentiality so when it comes down to the matter common sense really needs to be used in such a situation. Naturally, I wouldn’t be impressed if it was found out that someone was faking and didn’t have a rheumatic disease that we as a community are always advocating about. Shame on anyone who IS actually doing this they will never understand the hurt they are causing to those of us actually trying to help others and make a difference in the world.

    RABlogWeek2017-The Overlapping of various conditions.

    Overlap #RheumatoidArthritis
    #RheumaticDiseases #Hypertension, #Fatigue 

    I have Hypertension which is quite high and the bottom has been higher than what’s shown here in the top picture. 

    I have my Actemra Infusion for the treatment of the Rheumatoid Arthritis every 28 days and 

    also take my medications daily and use my other treatments too. 

    I definitely feel the affects and flare alot when my Blood Pressure is up.Moments like this make my infusion nurse want to run don’t blame him I feel like it too at times. 
    I haven’t been doing so great this year it’s been quite the struggle trying to keep my BP under control and the flow on effect to the Rheumatic Diseases which I live with. 
    I own my own Blood Pressure Machine as I have to Monitor my BP in between medical visits. I feel quite fatigued like I’ve done a huge run like a Marathon without actually running the Marathon 🤒. 
    I can nearly hear my heart pounding out of my chest sometimes and feel light headed. 
    Rheumatoid Arthritis is a full bodied systemic Disease and organs can be affected also. 
    Yes Absolutely 

    #PatientsHavePower I really wish with everything in me that the chronic Illness‘ I live with 

    would give me my POWER back and listen to that statement. 

    Dear Hypertension overlaps, #RheumatoidArthritis and all other chronic conditions U AREN’T WELCOME in my body and please disappear. 

    #AutoimmuneArthritis #CureArthritis

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