I am Judy Advocate for Chronic Illness and Mental Health,Published Writer in Real Life Diaries-Living With Rheumatic Disease(Find it on Amazon,Contributor in #IPainLivingMagazine,#CureArthritis Crew Member for the Arthritis National Research Foundation,@AIArthritis Rep,International Pain Foundation(#IPain) Delegate,@Clara_Health Breakthrough Crew Member and WegoHealth Nominee in 2017 for best in show Facebook and Twitter. I live with Autoimmune/Inflammatory Arthritis(RA),Fibromyalgia,Migraines,PMR and others listed on my header. I Advocate in support of all who live with any illness,I make my own graphics aswell as volunteering online to help create global awareness.
Our community is often hard on each other, even going as far as accusing others of not having RA when they can physically do more than others. How can we educate our own community on RA and how it affects each one of us differently.
Letter to someone pretending to live with a condition like RA, Rheumatic Diseases or any other condition out there.(Time educate)
To whom this may concern,
Let me begin telling you about the symptoms many of us in our community live with regarding Rheumatoid Arthritis.
Chronic Pain and stiffness
Low red/white blood count
Flu Like symptoms
Oral Health Issues
blocked or hardened arteries
Being more prone to infection
How Rheumatoid Arthritis is treated
DMARDS-Disease-Modifying AntiRheumatic Drugs and Biologics are used to treat Rheumatoid Arthritis by acting on the immune system to slow the disease progression. If you are faking I urge you to STOP doing this as we take our DMARDS and biologics to keep us moving and to slow the damage this disease can cause. You must realise that you are hurting us by doing this.
Some of us in the community choose other paths like taking other therapies and that’s ok too because we are all different and we all have the right to choose what works best for us.
While u sit there faking the disease you are generally downplaying the disease those of us genuine folks live with everyday PLEASE STOP because that’s not ok.
Sincerely Judy The United Advocate on behalf of the #RheumaticDisease and #ChronicIllness Communities.
My thoughts on someone having or not having RA(if someone is faking or not)
Honestly in my opinion we should all support each other everyone’s pain is valid whether someone has it worse than someone else is besides the point. If they don’t have it then of course that would be very wrong in claiming that they did but until we know for sure I guess we as a community have to assume that they do until such a time one knows for sure. The only way we would know for sure is if their doctor told us and that would be a breach of confidentiality so when it comes down to the matter common sense really needs to be used in such a situation. Naturally, I wouldn’t be impressed if it was found out that someone was faking and didn’t have a rheumatic disease that we as a community are always advocating about. Shame on anyone who IS actually doing this they will never understand the hurt they are causing to those of us actually trying to help others and make a difference in the world.
I Live with Rheumatoid Arthritis, Polymyalgia Rheumatica, Fibromyalgia, Spinal stenosis, Scoliosis and Migraine among other comorbidities.
Sometimes I find it hard to differentiate one Rheumatic Disease from the other and I have neurological diseases aswell which could impact one over the other.
I guess one could say if I have a Migraine with all the nasty symptoms that go along with it then I wouldn’t be able to have my Rheumatoid Arthritis Treatment which is an Actemra Infusion administered by IV every 28 days. If I get an infection like the flu I have to put off my infusion and wait until I am fully recovered and that can have a massive impact on the symptoms of the Rheumatoid Arthritis missing any treatment will put me in a flare.
Spinal Stenosis in my neck can also bring on a Migraine and Rheumatoid Arthritis also can due to associated pain with each of the conditions.
Hey everyone please check out the latest issue of#IPainLivingMagazinefree to view from the International Pain Foundation. Here is the link to the #IPainPatientPartnerSpotlight which is me on pages 48 and 49.
After checking out the patient spotlight section scroll through from the 👉beginning of the IPain Living Magazine Thankyou to the International Pain Foundation for featuring me in your #PatientPartnerSpotlight section and including the #RealLifeDiaries-Living with Rheumatic Diseases book aswell.<b
you would like to purchase the book as a great resource for yourself or a loved one who lives with a Rheumatic Disease please do so here http://amzn.to/2n5OSDv